Thursday, November 17, 2011

Celiac What?

So this post is going to be mostly about me and what i have recently discovered
a little back history though since i was a teenager I have had issues with stomach pain and not feeling good, but every time i went to a doctor about it I was told your fine there is nothing we can see wrong, its all in your head or you have a nervous stomach your just going to have to deal with it or figure out how to calm down....so I have just delt with it all these years, well in August I went to my family doctor and told her about the pain I have that comes and goes and how I feel Nauseated all the time,she thought maybe I had gallstones so I was sent for an Ultrasound that however came back clean so it wasnt that but she said she wasnt sure why i was in pain but wanted to send me to a GI doctor to see if they could find an answer for me.
So last week I saw the GI doctor and we went through my history and the pain I have and one of the first things he asked me was has anyone ever tested you for H.polori or Celiac Disease.......Um no I wasnt even sure what those things were. So he explained that the H.polori was a common stomach infection and the Celiac was Gluten Intolerance so I left with a lab slip had my blood drawn and Yesterday I got a phone call from the GI doctor that I did not have H.polori but I came back Positive for Celiac Disease .............So now I am waiting for the scheadule person to call and set up a time for me to come in and have a Biopsy of my small intestine done can we say NO FUN! but the GI doctor wants to do this for 2 reasons 1. to be able to give a 100% diagnosis and 2. to see how much damage has been done.
So while I am glad to have an answer to know that I was not Crazy that it wasnt all in my head I am angry/sad that I have yet something else that is life long to deal with that some of the issues I have had over the years could have been avoided all together had I known that I had Celiac , I found in research I have done that celiac that is not controlled can cause Infetility and Miscarrige both I have suffered over the years....once the Biopsy is done I will start a Diet that eliminates Wheat,Barley,Rye and Oats....I have had some great friends tell me of stores to get food from cook books to pick up so that I can continue to bake and do the things I love to do......and yet while I know this will be pretty easy to handle just more attention paid to things I am buying I cant help but scream inside and think Why is this happening to me? Wasnt what i have been through enough??? I have diabetes that comes with enough restrictions in life! now I am adding the celiac which is more restrictions more things i have to be aware of and worry about, I know there are far worse things to have to deal with and I am grateful that this something that I can do something about and that i will feel better but I just cant understand why this keeps happening to me.....of course now that I know all of this Now I can fix me! I wont have to be Tired and feeling sick all the time to have to fake that I am feeling fine when really I want to just curl up in a ball and wait for it to stop.......I just wonder to how all the doctors missed this? and why isnt this something that is routinely tested for? its a simple blood test and it could save so much suffering.